My Quest for a Cure - I hate ALS
It's hard to believe that this November will mark the three year anniversary of the day I lost my best friend and mom due to complications of ALS. She was diagnosed in July of 2013 and within 2 years was confined to a wheelchair, depended on many machines throughout the day, a breathing machine twice a day, and another one to sleep at night, a feeding tube to help her get the nutrients she needed and a computer to talk for her. While this was terribly difficult to watch for all of us who loved her, her attitude always remained positive. She continues to inspire me every day to live my life to the fullest as she always did.
While my mom's battle has ended the battle remains for others afflicted with this awful disease. Many people face this disease younger than my mother was when she was diagnosed at the age of 65. People with children and jobs who provide for their familes whose lives are uprooted, as our was, by this devasting disease. So until a cure is found, I will continue the fight in honor of my mother and every person and family who has faced, or will face this disease in the future.
Shortly after my mother was diagnosed we found the Les Turner ALS Foundation and immediately signed up team "Nana's Warriors" for their annual ALS Walk for Life. The support we received from our friends and family was astonishing and meant the world to us.This year we will once again be attending the ALS Walk for Life and hope you will consider joining us or donating to our team.
While I don't think we will participate in the walk this year I am still going to try to raise funds for the cause so please consider a donation, no amount is too small.
About The Les Turner Foundation:
The Les Turner ALS Foundation’s ALS Walk for Life has raised over $10 million dollars in 13 years and is one of the largest gatherings of the ALS community in the world. In 2014, the Walk broke records as 7,000 people came together to raise $1.3 MILLION. The money we raise together goes toward helping people currently living with ALS (PALS) and their families through the Foundation’s Home and Community Services and grant programs. It also supports the Les Turner ALS Research and Patient Center at Northwestern Medicine where PALS are seen by a multi-disciplinary clinical staff at the Lois Insolia ALS Clinic, ensuring no part of their disease goes unseen and untreated. The Center also supports three research laboratories, each one providing hope of a future without ALS.
I’m participating in the ALS Walk for Life this year because I believe in the work of the Les Turner ALS Foundation, I believe in providing the best possible care to Chicagoland area ALS patients and their families and I believe that the money we raise together will lead to finding the cure for ALS. Join me as we Walk to end ALS.
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