Welcome to My Personal Fundraising Page
This October I will be participating in the Chicago marathon in support of Team Race for ALS. ALS is a progressive degenerative disease that destroys motor neurons. While there are about fifteen new cases a day, there still is no cure. One reason for this is that there are many mechanisms that contribute to the symptoms. The combination of multiple mechanisms makes it hard to understand, and contributes to the complexity and lack of understanding for treatment and prevention.
A personal friend of mine, Eric was diagnosed on June 19th 2013, just before his 30th birthday; ten years earlier than the standard age range of 40-70 years of age. Despite learning about how the disease progresses, he maintained an attitude equivalent to one prior to hearing this news. He still continued to go out with his friends and family, attend almost any Chicago sporting event (besides the cubs), and enjoy music concerts around the city. Six years later he continues to live his life despite being told he only had 2-5 years to live. Stanley Apple M.D. co-director of the Huston Methodist Neurological Institute says that,
“I call ALS “the nice guys’ disease.” For, as indiscriminate as it appears, ALS certainly has a way of finding the best and most courageous people to attack. Watching people endure the wasting of their muscle control and seeing them defiant in the face of the sure and steady loss of communication and independence, makes me defiant too. People with ALS fight the disease with great courage.”
I don’t think anyone could encapsulate this idea better than Eric.
I am asking you to please donate to this cause and help me reach (and surpass) my fundraising goals. Even though the ice bucket challenge raised around $115m, continuous funding is this best approach to sure future advances and support to those fighting. Many of which lose their medical coverage once they are no longer able to work. Any amount is appreciated
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