Paul Launer's Iron Horse Brigade
Hard to believe that it's been three years since our inspiration, Paul Launer, succumbed to his battle with ALS. He never stopped fighting, and neither can we! Paul, upon being diagnosed in 2011, found the silver lining in ALS. He told me that he could be killed in a car accident or drop dead of a heart attack, but ALS gave him the gift of time to say goodbye. I first met Paul in late 2012. He was looking for someone to write things down he wanted to leave behind for his two beautiful elementary school-aged daughters. We worked on our project for over two years until he lost the ability to speak. Towards the end of his speaking voice I told him, "Paul, you are starting to sound like Barry White, my friend" to which he replied in his guttural, halting voice, "there's worse things". Wow. Incredible.
Our team is participating in the 2018 ALS Walk for Life to honor his memory and because we believe in the work of the Les Turner ALS Foundation. We believe in providing the best possible care to Chicagoland area ALS patients and their families. We believe that the money we raise together will together will lead to finding the cure for ALS. WE BELIEVE! But we need your help . . .
The ALS Walk for Life is one of the world's largest gatherings of ALS patients, families and friends. Now in its 17th year, the Walk has raised over $12 million in support of Chicago's independent leader in ALS, the Les Turner ALS Foundation. Our team is proud to have raised over $400,000 in our five years of participation. But we need help. Lots of it.
The money raised through the Walk helps people currently living with ALS (PALS) and their families through the Foundation’s Home and Community Service and grant programs. It also supports the Les Turner ALS Research and Patient Center at Northwestern Medicine where PALS are seen by a multi-disciplinary clinical staff at the Lois Insolia ALS Clinic, ensuring no part of their disease goes unseen and untreated. The Center also supports three full functioning research laboratories, each one providing hope of a future without ALS. This is what I love about the Les Turner ALS Foundation. They are the full package. They provide invaluable patient resources to families - many of which are struggling with the diagnosis, don't know which way to turn- and there's the Les Turner ALS Foundation. Providing help when they need it most. Providing hope, too, through research. Care and research. Two things that the ALS community is sorely in need of. WE BELIEVE!
Join us as we Walk to end ALS. We welcome your participation on our team through being there with us in body OR spirit as we walk to provide care and hope. WE BELIEVE!