Hi Family & Friends!
I wanted to let you know that we are participating in the Les Turner ALS Virtual Walk For Life on Saturday, September 26th to support my mom, Eloise with her fight against ALS. This foundation is near and dear to my heart as ther Les Turner Clinic within Northwestern Hospital is where my mom has her quarterly ALS clinic appointments. The doctors, nurses and social workers have been there for her and our family every step of the way providing exceptional care, guidance when we felt overwhelmed and medical equipment as new symptoms arose. They're also working tirelessly to find a cure for this devastating disease. They truly do so much good, and I want to help give back in any way that I can.
After experiencing sudden slurred speech and progressive weakness in her hands and arms in August of 2018, my mom spent the next few months seeing countless doctors and was ultimately diagnosed with ALS in January 2019 right after her 70th birthday. It was a devastating diagnosis to her and to our whole family. Since being diagnosed my mom has progressed significantly. She has lost the ability to speak, is no longer able to eat or drink anything and relies on her G-tube (feeding tube) for her daily nourishment. She can no longer walk unassisted, and we are currently waiting for her motorized wheelchair to be delivered. We are hopeful this will give her some independence back.
Although my mom needs help with all of her daily tasks and self care, she has been so incredibly brave and positive through it all. She is doing everything she can to continue living her life to the absolute fullest. In October of last year she went on a European adventure to London, Paris, Rome and Florence with my husband and I. It was a life long dream of hers as she had never been to Europe and absolutely loved it! My mom is a true inspiration to us all!
We know this is such a difficult time in the world, and we are hoping to make a positive difference. ALS is a scary disease that currently has no cure, but we are doing everything we can to change this. The ALS Virtual Walk format still allows teams to fundraise in honor of a loved one with ALS and gather together for smaller walks around their own community, which we plan to do. All the money raised from the ALS Virtual Walk for Life goes directly back to the Les Turner ALS Clinic in Chicago where my mom is being cared for by an amazing team.
Please mark your calendars if you'd like to participate with us or in your own community, and click on the link to Join our Team. If you'd like to support my mom and and others living with ALS, you can do so on our page.
For more information about ALS or the Les Turner ALS Foundation, you can visit lesturnerals.org.
Thank you so much for all of your love & support!