Join me as I participate in Les Turner ALS Foundation’s 22nd Anniversary ALS Walk For Life!

Hi all! Last year we started Tiffany’s Team. I did not write a bio. I didn’t really know what to say. So for those that know me and those that don’t here goes my story.

My name is Tiffany McGivern. I’m 44 years old. I have an amazing husband Sean that I’ve been friends with since high school. We have two boys, Joey(9) and Jackson (7).

About two years ago my index finger on my left hand was weird; it was slower than the rest. I went to the doctor who sent me to a neurologist. On September 12 2022 after about 8 months of waiting for many appointments, tests and neurologists, I was finally told my diagnosis, ALS. I immediately started to cry and was in disbelief. I knew what ALS was. My ex boyfriend’s mom and a good friend’s dad had both passed from ALS.

So what started with a finger is now slowly starting to affect the rest of my body. My hands are super weird and awkward. I now use a walker (aka my Rolls-Royce) or if I leave my house, I use my new power wheelchair (aka my Bugatti). My boys are super into fancy cars hence the naming of the mobility devices. I still eat, drink and breathe pretty normal but my speech is a bit slowed or slurred at times. The hardest part is losing the freedom to do what I want when I want. Needing help with almost everything is super frustrating.

Luckily, I have the most amazing support from family and friends. I’m also super grateful for the support and help from the Les Turner Foundation. I don’t think people understand all that the foundation does to help. I have ALS Clinic every 3 months. ALS Clinic is my neurologist and a team of doctors/therapists I meet with based on my needs. During those clinics I always see Cara from Les Turner. Shes always there to try to help things be a bit easier in small ways and big. Whether it’s recommending to ask for in home Physical Therapy (who knew to ask, making it so much easier to learn and be comfortable in your own home) and helping find a family therapist. She helped get my power wheelchair without having to jump through a million insurance hoops to get it. They’ve invited us to events such as cubs games, helping make unforgettable memories.  Just recently they were a huge help in getting our wheelchair chair accessible van! Those are just the things that make my life easier. I’m also on a trial drug that is funded by The Les Turner Foundation in hopes to find a cure.

The Les Turner Foundation was started in 1977 in a living room by friends and family of Les Turner at a time when there wasn’t much help for people with ALS. It’s friends and family that helped it grow to what it is today. I thank everyone that’s ever donated and willing to donate. You will be helping make life a tad bit easier and hopefully much longer for people like me.

Thank you to all my family and friends! I love you! FUALS